The Jacksonville Food Allergy Symposium is bringing together the best minds on food allergy research and management. Please join us on October 17 at 9:00am at Florida State College at Jacksonville’s Wilson Center (11901 Beach Boulevard, Jacksonville, FL). More information, www.fafofstjohns.org/symposium
You may have heard about Dr. Nadeau’s reasearch and clinical trials at Stanford University. They are testing how the drug Xolair works to improve safety and efficacy of multi oral immunotherapy. A 2013 New York Times article discusses the clinical trial and Dr. Kari Nadeau. The next stage of the clinical trials is to be conducted around the country and possibly in Florida.
“Once completed, the published results from the Clinical 2 trials should increase the access of the therapies developed by Dr. Nadeau and her team, allowing individuals to potentially receive these treatments at their local allergists and help with insurance reimbursements. This is immensely important and will have a huge impact to bring this type of therapy to the world in a real-time, tangible way.”(As stated on Dr. Nadeau’s fundraising site.
If you are interested in possibly participating in stage 2 of the clinical trials if they were in Florida, please email food allergy mom Taryn Weinstock at firstname.lastname@example.org with your child’s name, DOB, and a contact number.
Want to become involved in FARE’s Teal Pumpkin Project, but don’t have the time to paint a pumpkin teal? One of our members is making the reusable pumpkins and selling them for $15-$20 and donating some of the profits to FARE. Email Madelen Salter at email@example.com for more information or place an order on www.tealpumpkins.com or https://www.facebook.com/saltsistersboutique/info.
There are many reasons that Halloween can be scary for children – goblins hiding in the dark, frightening ghost stories, and food allergens in their candy bag.
With one in 13 children with a food allergy, many of the kids coming to your door reciting “trick or treat” will be allergic to some of the goodies you hand out. FARE (Food Allergy Research & Education) developed the Teal Pumpkin Project to encourage families to hand out some non-food items to children with food allergies. Non-food treats can include glow sticks, pencils/pens/markers, stickers, bubbles, erasers, mini slinkees, bouncy balls, bookmarks, and spider rings sold at dollar stores, Amazon, and Oriental Trading.
Communities across the nation have embraced the idea of promoting awareness of food allergies this Halloween by offering a safe alternative to those with food allergies (such as in New York, Virginia, and Ohio). Join the millions of people learning about this campaign here. (FARE’s first Facebook post reached more than 2.7 million people in the first 72 hours and CNN covered the story this week.)
Other ways to keep any children in your household with food allergies safer is to do an “exchange” on your doorstep of the candy they received from trick-or-treating for non-food treats or candies you know are safe for your children. One of our members found candy corn sold at Fresh Market on San Jose Blvd in Mandarin that is made in a peanut-free facility.
In addition, the following online resources list candy that are free of the top 8 allergens (peanuts, tree nuts, eggs, dairy, wheat, soy, shellfish, fish). However, always read food labels and contact the manufacturer if you have further questions.
Food Allergy Feast Halloween blog, October 13, 2014 post
Kids with Food Allergies Easter candy blog
This morning, Andrea Miller and Summer Pachman, of Food Allergy Families of St. Johns, appeared on Jacksonville’s First Coast Living news show. We aimed to teach the viewers that food allergies is a rising health concern in the U.S. and is not to be confused with food intolerances or sensitivities. Reactions to a food allergy can be life-threatening.
Keeping individuals with food allergies safe, especially the 5.9 million U.S. children with food allergies, by avoiding their allergens can be accomplished with due diligence – including reading ingredient labels closely and hand washing after eating. Ingredient labels can be confusing (such as the two jars of organic chicken stock and conventional chicken stock made by the same manufacturer pictured below with one jar containing milk and one not containing milk).
In addition, hand washing and use of hand wipes after eating can remove food proteins, however, hand sanitizer does not.
Alternative food products are available to avoid the most common allergens, including non-dairy milks and alternative peanut butter spreads.
The upcoming events are occurring in Jacksonville – the Jacksonville Food Allergy Symposium, October 4, 9:30am, University of North Florida and the FARE Walk for Food Allergy, November 22, 10:00am, Nocatee Park.
Florida State Senator Aaron Bean of Jacksonville supported Florida’s recently-passed law, Emergency Allergy Treatment Act. The law allows such places as restaurants, camps, and amusement parks to store epinephrine (life-saving emergency medicine for allergic reactions) and use it on individuals experiencing an allergic reaction. Allergic Living called the legislation the most “expansive” stock epi law in the country.
We had the opportunity to meet Senator Bean today to thank him for his support of the food allergy community and learn more about the ways the Florida Department of Health is beginning to draft rules on the specifics of the law, such as how to train employees on the use of epinephrine auto-injectors. More news to come on this topic as we learn how the food allergy community in Florida can advocate for our favorite places to implement the law.
August 5, 2014 marks the first day manufacturers must comply with the FDA requirement that foods and dietary supplements sold in the U.S. that include a claim of gluten-free must contain less than 20 parts per million of gluten. The requirement does not cover non-food items, such as cosmetics, or foods regulated by the USDA, such as meat and poultry.
Gluten is a protein found in wheat, rye, barley, and oats (unless the oats are pure, uncontaminated oats).
To learn more, access the FDA Q&A site: http://www.fda.gov/food/guidanceregulation/guidancedocumentsregulatoryinformation/allergens/ucm362880.htm
Food allergy expert, Lynne Heun, from Food Allergy Research & Education (FARE) presented to to St. Johns County school nurses on Tuesday, August 5. This event was courtesy of a grant to our group from FARE. The FARE Family Services Manager presented on topics related to prevention and treatment of a food allergy reaction and inclusion strategies for these students in school. The presentation supplemented the nurses’ annual training prior to school beginning this month.
054The co-leaders of Food Allergy Families of St. Johns were honored to attend the FARE (Food Allergy Research and Education) National Food Allergy Conference in Chicago courtesy of travel scholarships from FARE. We made contacts with other food allergy support group leaders and industry specialists, attended sessions on a variety of food-allergy related topics, and received a number of giveaways.
We want to share some of the information we gained with the support group and giveaways (attend our summertime pool party, date pending, to receive giveaways). Please contact us to let us know what you would like to learn more about:
Food allergies at school, camp, and college
Food allergies 101 and the science of food allergies
Balancing nutrition with food allergies
Anxiety and emotional reactions to food allergies
Advocating for your child and communicating about food allergies
Other related conditions – asthma, EOE, and Celiac
Food allergy research
FARE’s current priorities
Fundraising for the annual FARE Walk for Food Allergy has begun! Our generous neighbor Jennifer and her daughter, Lily, held a lemonade stand and raised more than $200 for food allergy research and education. Lily, who does not have food allergies herself, has many friends with them and wanted to contribute to the cause. This family’s compassion is an inspiration to all of us affected by food allergies.
The fundraising walk will be Saturday, November 22 at Nocatee in Ponte Vedra. Join the Food Allergy Families of St. Johns’ team to walk or raise funds, www.foodallergywalk.org/jacksonville2014/foodallergyfamilies
Lily’s lemonade stand